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Thread: My 2 month old son has a rare liver disease...

  1. #1 Default My 2 month old son has a rare liver disease... 
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    Hi everyone

    Our 2 month old son had an operation 3 weeks ago called the "Kasai procedure" He has a rare liver disease called Biliary Atresia.
    Obviously this has hit us hard but we're fighting just as our son is. (He's a warrior)
    I'm trying to raise money for the charities that have helped us and also raising money for Casey and to help our situation to be a little better than it currently is.
    We have a lot going on other than what I have written in our GoFundMe page that I'm trying to keep personal but if you would be kind enough to just have a look that would be very appreciated!
    Sorry I'm not great with writing stuff down, trying my best.

    <Removed by mod under forum policy not to encourage exchange of personal details via the forum>


    Here is a link to our personal son's GoFundMe page https://www.gofundme.com/casey-fights-biliary-atresia


    Here is a link for a charity close to our hearts https://www.justgiving.com/fundraising/CaseyBonney

    Here is a link to Children's Liver Disease Foundation that helps explain the basics of Casey's condition. It does also have a more in depth leaflet you can download. https://www.childliverdisease.org/In...iliary-Atresia


    I will also be doing my best to raise awareness for this rare condition because many families had Doctors send them home because the Doc didn't know what to look out for!

    Thank you from us all!! <3
    Last edited by MySonCasey; 18-4-17 at 16:05.
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  2. #2  
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    Bump.

    Stay strong!
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  3. #3  
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    Bless the little man. It's a great thing you're doing mate. These kids are tough as nails, got to keep positive man, all the best.
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  4. #4  
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    Would it be ok if those of us who wish to share the links on social media?
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  5. #5  
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    Heart breaking. You have a beautiful little boy! Stay strong mate, I'm sure he's a fighter.
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  6. #6  
    TheMelwoodMole is online now First team regular
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    Really feel for you mate. You have a strong young boy, please stay strong.
    ?
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  7. #7  
    kickthetyres is online now LFC Forums Moderator
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    Quote Originally Posted by rhoscoch View Post
    Would it be ok if those of us who wish to share the links on social media?
    Share away, I can't see any problem with that.
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  8. #8  
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    Thank you very much all. Please if you wish to share links or even make your own posts to help the rare disease become more known that would help very much.
    Some children have needed a liver transplant without the option of having an operation called the Kasai procedure because of doctors not knowing the signs to look out for early on in the babies life (before 8 weeks)
    Our baby boy may end up needing a transplant but it doesn't matter because I believe whatever gets thrown at him he will come out the other end stronger than ever!!
    Again thank you!

    Sometimes all it takes to give people strength is kind words... Love to you all <3
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  9. #9  
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    Thoughts are with you, your family and young Casey - saw a couple of comments on one of the links you gave, MySonCasey, and the one from the one lady who had a child with the same condition but who has now recovered after having the Kasai procedure (almost completely, it would seem), must surely give you guys a lot of hope. Am truly hoping for a similar outcome here for Casey.

    YNWA.
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  10. #10  
    Red-And-Proud is online now First team regular
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    Sorry to hear this, keep us updated, sending positive thoughts to hope your little one can recover.
    Klopps beard twin
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  11. #11  
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    Quote Originally Posted by grenny158 View Post
    Thoughts are with you, your family and young Casey - saw a couple of comments on one of the links you gave, MySonCasey, and the one from the one lady who had a child with the same condition but who has now recovered after having the Kasai procedure (almost completely, it would seem), must surely give you guys a lot of hope. Am truly hoping for a similar outcome here for Casey.

    YNWA.

    Yes it really does and I have been searching out other's that have had a good outcome...it helps!
    Thank you so very much for the kind words grenny! YNWA
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  12. #12  
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    Quote Originally Posted by Red-And-Proud View Post
    Sorry to hear this, keep us updated, sending positive thoughts to hope your little one can recover.
    We have to go back to the specialist hospital on the 24th. We're hoping for some of our worries to fade a little but we don't know.
    I'll post an update when we get back

    Thanks mate <3
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  13. #13  
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    Here is a link to Children's Liver Disease Foundation that helps explain the basics of Casey's condition. It does also have a more in depth leaflet you can download.

    https://www.childliverdisease.org/In...iliary-Atresia
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  14. #14  
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    Can't imagine what you must be going through mate, me and the wife get concerned if our little one as much as gets a cold!

    Hope you raise what you need
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  15. #15  
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    Quote Originally Posted by BrummieRed View Post
    Can't imagine what you must be going through mate, me and the wife get concerned if our little one as much as gets a cold!

    Hope you raise what you need
    You just have to mate as best you can, we just try and keep busy. Thanks mate!
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  16. #16  
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    Myself and the missus now have a place in The Great North Run which takes place in September.
    We're doing it to raise awareness and to raise money for The Sick Children's Trust & Children's Liver Disease Foundation

    YNWA
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